Crohn's disease is a type of inflammatory bowel disease that causes inflammation in the digestive tract. This inflammation can result in symptoms such as abdominal pain, diarrhea, fatigue, and weight loss. The severity of symptoms can vary widely from person to person, and flare-ups may occur unpredictably, making it difficult to maintain a consistent routine.

Living with Crohn's disease can interfere with daily tasks, work responsibilities, and social interactions. Having a strong support network plays an essential role in managing this condition. Emotional and social support can help reduce stress, which may lead to fewer flare-ups and improved overall well-being.

Support Services for People With Crohn's Disease

Support for those living with Crohn’s disease comes in many forms—emotional, financial, practical, educational, and community-based. Below is an overview of the types of resources available to help navigate life with Crohn's disease:

Emotional Support

Connecting with others who understand your experience can be a powerful source of encouragement. Several organizations offer support groups and peer programs:

  • Crohn's & Colitis Foundation provides nationwide support groups tailored for people with Crohn’s disease. These groups offer a safe space to share experiences, ask questions, and receive emotional support. Specialized groups exist for caregivers, women, men, individuals with ostomies, and more. The Power of Two program pairs participants with trained mentors for one-on-one support via video calls, messaging, and resource sharing.

  • Crohn’s and Ulcerative Colitis Companion helps individuals find trustworthy support communities, including reputable social media groups where members share advice and encouragement.

  • Connecting to Cure Crohn’s and Colitis hosts monthly virtual support groups for patients, caregivers, siblings, and children of individuals with inflammatory bowel disease.

  • Professional mental health support from licensed therapists, counselors, and psychologists can be a key part of coping with the emotional challenges of Crohn’s disease. These professionals can offer strategies to manage stress, and your healthcare provider can help connect you with a suitable therapist.

Financial Support

Managing Crohn's disease can be expensive, but several organizations offer financial assistance to help offset costs such as medication, treatment, and insurance premiums:

  • Crohn’s & Colitis Foundation offers guidance on navigating insurance and connects patients to co-pay card programs, scholarships, and financial aid to reduce out-of-pocket expenses.

  • Patient Advocate Foundation Co-Pay Relief Program assists with medication costs, doctor visit payments, and insurance premium support. Funding may be limited throughout the year, so it’s important to monitor their updates.

  • PAN Foundation IBD Program provides help with the cost of medications for individuals with Crohn’s disease. Application availability is limited and opens at specific times, so checking their website regularly is advised.

  • NeedyMeds is a nonprofit that maintains a database of patient assistance programs, discount drug cards, and other cost-saving resources for medical care and prescriptions.

  • Meals on Wheels delivers nutritious meals to individuals facing financial hardship or difficulty preparing food due to symptoms of Crohn’s disease.

Practical Support

Living with Crohn’s disease requires flexibility and preparation for unexpected situations. These tools and services can help you manage day-to-day life more easily:

  • We Can’t Wait App helps users find the nearest available restroom quickly—especially useful during flare-ups.

  • Travel guides for IBD patients provide tips on packing medications, navigating airport security, finding restrooms while traveling, and managing flares on the go. They also include resources for locating medical care at your destination.

Educational Support

Knowledge is power when managing a chronic illness. Access to accurate and up-to-date information can help you and your loved ones feel more confident and prepared.

  • United Ostomy Associates of America offers guidance and ongoing support for individuals who are undergoing or have had ostomy surgery. Their educational materials help patients and caregivers understand surgery and recovery.

  • American Society of Colon and Rectal Surgeons provides expert-reviewed content about treatment options and surgical procedures related to Crohn’s disease.

  • Centers for Disease Control and Prevention (CDC) offers evidence-based resources on the causes, risk factors, and management of Crohn’s disease and other chronic inflammatory conditions.

  • National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) supplies scientific information on the symptoms, diagnosis, and treatment of Crohn’s disease, as well as research into emerging therapies.

Demographic-Specific Support Groups

Support is most meaningful when it reflects both your medical and personal background. These programs aim to serve diverse communities:

  • Color of Gastrointestinal Illnesses focuses on the needs and experiences of people of color with gastrointestinal disorders.

  • South Asian IBD Alliance offers support tailored to individuals of South Asian descent living with IBD.

  • Just Like Me connects teenagers with IBD to peers who understand the emotional and physical challenges they face.

  • Campus Connection helps college students manage Crohn’s disease while balancing academic and social life.

How To Find Support

Although support services exist, finding the right one may take some effort. Here are ways to get started:

Ask Your Healthcare Provider

  • Request referrals to local support groups or mental health professionals

  • Ask to speak with a social worker or patient navigator for help with accessing financial aid

  • Explore hospital-based resource centers for information on local programs

  • Contact your insurance company for a list of covered support services

Use Online Search Tools

  • Search using phrases like "Crohn’s disease support group" and include your city name

  • Try "IBD financial help" plus your state for region-specific results

  • Use social media platforms like Facebook, Instagram, TikTok, or X to find active Crohn’s communities using hashtags

If you don’t have internet access at home, public libraries usually offer free internet where you can browse support options.

Affordable Support Options

Many support programs are free, and others offer sliding-scale fees based on your income. Here are some tips to find budget-friendly help:

  • Ask support providers about available financial assistance

  • Check if your insurance plan covers therapy or nutritional counseling

  • Reach out to community health centers or local health departments

  • Consider telehealth services, which may be more affordable than in-person care

Why Support Matters

Crohn’s disease doesn’t only affect the body—it can take a toll on your mental health as well. Many people living with the condition experience anxiety, depression, or even PTSD. These feelings are often more intense during flare-ups or hospitalizations.

Financial stress is also common. On average, people with Crohn’s disease spend more than three times as much on healthcare compared to those without IBD. The costs of medication, appointments, and daily management can add up quickly.

Having a reliable support system can make all the difference. It improves emotional resilience, reduces stress, and contributes to better health outcomes.

How To Support Someone With Crohn’s Disease

If someone you care about lives with Crohn’s disease, your support can be a source of comfort and strength. Every experience is different, so stay flexible and considerate. Here are meaningful ways to help:

  • Learn about the condition to understand what they’re going through

  • Be flexible with plans in case they have a sudden flare-up

  • Respect their food choices and avoid triggering meals

  • Help find restroom locations when you're out together

  • Offer practical help like running errands or cooking

  • Listen without judgment—just being there matters

  • Respect their privacy and let them share at their own pace

  • Stand up for their needs in social, academic, or work settings

  • Celebrate their good days and moments of remission

A Quick Review

Living with Crohn’s disease can be complex, but support services—from financial programs to emotional connections and practical tools—can ease the burden. Talk to your healthcare provider about available resources, explore trustworthy organizations, and don’t hesitate to seek help. Whether you're managing the disease or supporting a loved one, know that you're not alone—and that support is always within reach.